Solutions For Patients With Nystagmus

World_Council_of_Optometry_and_Alcon_Extend_Global_Partnership_for_Dry_Eye_Disease_Education_(Facebook_Post)_(1).jpg

Last December LI was invited to present one of three FREE interactive CET webinars for Optometrists and Dispensing Opticians hosted by the Nystagmus Network charity based in the UK.

" What is  Nystagmus "

Nystagmus is a form of visual impairment, characterised by wobbling or flickering of the eyes, from side to side, up and down or round and round. This affects the ability to focus, judge speed and depth and recognise faces.:

The Nystagmus Network is a registered charity in England and Wales.

I presented a session on "Solutions for patients with Nystagmus"exploring dispensing spectacles and contact lenses for patients with infantile and acquired nystagmus.

The solutions touched upon surgery, prisms, spectacles , contact lenses, low vision aids , referrals to an ECLO : eye clinic liason officer , a rehabilitation team to help with daily living skills and mobility training and genetic counselling as nystagmus has a genetic component and often can be accompanied by a number of other conditions like *albinism and **acromatropsia to give two examples.

*Albinism is the name given to a group of inherited conditions where there is a lack of pigment ( colour) in the eyes and usually in the skin and hair 

** Acromatropsia is where the person has a complete lack of colour vision so may see the world in black and white or have incomplete acromatropsia where not all of the cone cells responsible for colour are affected.

I highlighted contact lenses in this session as they are not generally thought about for patients with low vision but can be useful because often these patients may have high refractive errors and high astigmatism resulting in thick lenses which can be uncomfortable and unsightly to wear.

With contact lenses the comfort may be improved and the freedom to do more activities like sports is a boon plus the increase in self esteem and self confidence may well be worth the effort for patient and practioner.

There are theraputic uses also such as sentivity to light and glare as often seen in nystagmus and during my research for this webinar I found a contact lens manufacturer that offers prosthetic coloured contact lenses that could benefit patients by reducing the glare, and possibly offer improved comfort and vision  and improved cosmetic on a light coloured iris.

The  other two sessions were 

"Investigating and Managing nystagmus in the Orthoptic Clinic " was delivered by Gemma Arblaster, Orthoptist at Sheffield Teaching Hospitals NHS Foundation Trust and Lecturer in Orthoptics at the University of Sheffield.

The charity’s Information and Development Manager, Sue Ricketts, presented her webinar "1 in 1,000 things you never knew about Nystagmus", looking at nystagmus from the patient perspective and explaining how patients can best be accommodated in practice. 

Around 200 practitioners attended each webinar over the course of three evenings.

I would like to thank  Sue Ricketts and the Nystagmus Network for their following their ambitious aim to bring eye care practitioners and their practices and the nystagmus community closer together, to build stronger relationships, based on knowledge, experience and trust. 

 

 

 

HOW TO BE AN IDEAL LASIK PATIENT

HOW TO BE AN IDEAL LASIK PATIENT

INTRODUCTION: In the search for perfect vision, LASIK surgery has become the most popular choice, offering a solution to get rid of glasses and contact lense...

read more
Solutions For Patients With Nystagmus

Solutions For Patients With Nystagmus

Last December LI was invited to present one of three FREE interactive CET webinars for Optometrists and Dispensing Opticians hosted by the Nystagmus Network cha...

read more
Seeing the unseen, the revolutionizing journey of Ophthalmology and Optometry with AI

Seeing the unseen, the revolutionizing journey of Ophthalmology and Optometry with AI

Certainly, Artificial Intelligence is rapidly growing appliance that already proved as an emergent tool in several fields. Now by the assistance of AI we can op...

read more
Decoding : Anti-Reflective Coating

Decoding : Anti-Reflective Coating

Anti-reflective coating aka ARC is an external layer created by particles of metal oxides in form of very thin sheets over the surface of the ophthalmic lens wh...

read more

"Through the Lens: Unveiling Contact Lens-Associated Microbial Keratitis"

Microbial keratitis (MK) linked to contact lens wear presents a significant clinical challenge due to its diverse array of causative agents and underlying facto...

read more